Glossary

Definitions

Data

The definition of data is going to depend on the discipline, project, and use. For example, for the purposes of data sharing, the NIH defines scientific data as “The recorded factual material commonly accepted in the scientific community as of sufficient quality to validate and replicate research findings, regardless of whether the data are used to support scholarly publications. Scientific data do not include laboratory notebooks, preliminary analyses, completed case report forms, drafts of scientific papers, plans for future research, peer reviews, communications with colleagues, or physical objects, such as laboratory specimens.” However, for the purposes of the conduct of research and using appropriate storage methods, all of the listed types of information are data. 

Types of dataWhat this meansExample
AnonymousData that were obtained or in current state stored without any identifiers linking to a specific personA researcher conducts a web survey without any direct or indirect identifiers
CodedIndividual cases in a dataset have a unique code. In a separate file, this unique code links each case to identifiable information. If the person using the data has access to the linked file, the data is considered identifiableA research team collects data and assigns a random ID number to each case. That number replaces their participant or source name in the dataset, and a file with the connecting information is stored separately.
De-identifiedData that had identifiable information in it, but that information has been removed and destroyedA researcher has a dataset with participant name, dates of events, and address. The researchers strips all of these variables from the data set.
IdentifiableData that includes participant name or other unique identifier. Indirect identifiers may also lead to identifiable data. A researcher collects data including name, email, and phone number.
 
Data Management Plan

This is a document that describes the process of managing the data over the course of the data lifecycle, including organization, collection, access, storage, protection, and sharing of research data. While frequently required by funders prior to award, a DMP should be updated over the course of the project (modifications may need to be pre-approved by the funder). The ultimate goal is that the data will be findable, accessible, interoperable, and reusable by others (see FAIR Principles). 

Data Sharing

This refers to making scientific data available for use by others, but there is not a one-size-fits-all solution. Data produced as part of federally funded research is expected to be shared to greatest extent possible within the ethical, legal, and technical constraints specific to the project. As noted under “data”, this does not apply to all data produced over the course of a project.

Digital Persistent Identifier (DPI)

This refers to a unique string of letters and numbers used to distinguish between, and locate, different objects or resources. The use of DPIs provides a consistent and reusable link for the identification of individual researchers, datasets, scholarly works, etc. Common types include the digital object identifier (DOI) and Open Researcher and Contributor ID (ORCID), but there are many types, including for pieces of equipment or centers like Research Resource IDs

Enterprise Software/Systems

Enterprise refers to things used by the organization, not just individual users. 

FAIR and CARE Principles

FAIR principles describe the goals of scholarly data for sharing and preserving scientific data. Data that are Findable, Accessible, Interoperable (meaning usable within different system), and Reusable have greater availability and are easier to cite, discover, and use with common tools. The Australian Research Data Commons has a FAIR Data Self-Assessment Tool that can help researchers identify ways to increase FAIRness

The CARE Principles for Indigenous Data Governance direct data users to make additional efforts in data sovereignty for Indigenous Peoples. The CARE Principles include Collective Benefit, Authority to Control, Responsibility, and Ethics. Together, FAIR and CARE work together to consider both people and purpose in the knowledge economy.

Metadata

The data about the data. The goal of metadata is to provide information to users of the data, with a growing push towards machine-readable formatting for ease of search and retrieval. Metadata may include descriptions of the data structure, basic information about the creation of the dataset, constraints for use, etc. Metadata standards may vary by discipline, and repositories may mandate what format is required.

Open vs. Public Access

Per SPARC, Open Access refers to content freely available on the internet without barriers to use. In comparison, Public Access is findable and accessible, but may include barriers to access, such as rules for access, distribution, and use. 

Repository

A data repository is a place to store data for the purposes of maintenance and/or sharing. Repositories are typically managed by curation specialists. NIH provides a list of desirable characteristics to look for when choosing a data repository. 

Risk Classification

Per Executive Memo 42, all data stored in University systems must have a data risk classification. The data risk classification determines the security controls applied to endpoints (devices/instruments), networks, data storage, etc. There are two data risk self-assessment tools used at UNL: one is for research data, and the other is for institutional data.

 

 

Acronyms

Conducting research involves many different agencies, offices, and terms. The list below includes a variety of terms related to research efforts at UNL. If you would like to suggest an addition to this list, please email researchdata@unl.edu

ACS: American Community Survey

AD: Active Directory

AY: Academic Year

BA/BAA: Business Associates Agreement

BI: Broader Impacts

BLS: U.S. Bureau of Labor Statistics

BOSR: Bureau of Sociological Research

CDC: U.S. Centers for Disease Control and Prevention

COI: Conflict of Interest

CBPR: Community Based Participatory Research

CDA: Confidential Disclosure Agreement

CFR: Code of Federal Regulations

CITI: Collaborative Institutional Training Initiative

COC: Certificate of Confidentiality

COGR: Council on Government Relations

DARPA: Defense Advanced Research Projects Agency

DBER: Discipline-Based Education Research

DFAR: Defense Federal Acquisitions Regulations

DHHS: U.S. Department of Health and Human Services

DHS: Department of Homeland Security

DMPs/DMSP: Data Management Plans/Data Management and Sharing Plans or Data Monitoring Plan

DOC: U.S. Department of Commerce

DOD: U.S. Department of Defense

DoEd: U.S. Department of Education

DOE: U.S. Department of Energy 

DOI: U.S. Department of Interior

DOJ: U.S. Department of Justice

DOL: U.S. Department of Labor

DOT: U.S. Department of Transportation

DTA: Data Transfer Agreement

DUA: Data Use Agreement

EAR: Export Administration Regulations

EHRs: Electronic Health Records

EHS: Environmental Health and Safety

EM: Executive Memorandum of the President (NU System)

EMA: Ecological Momentary Assessment

EPA: U.S. Environmental Protection Agency

F&A: Facilities and Administration Costs

FAIR: Findable, Accessible, Interoperable, Reusable

FDA: U.S. Food and Drug Administration

FERPA: Family Educational Rights and Privacy Act

FY: Fiscal Year

GDPR: General Data Protection Regulations (European Union)

GRA: Graduate Research Assistant

GTA: Graduate Teaching Assistant

HCC: Holland Computing Center

HIPAA: Health Insurance Portability & Accountability Act 

HRPP: Human Research Protection Program

HSO: Nebraska Highway Safety Office

IACUC: Institutional Animal Care and Use Committee

IBC: Institutional Biosafety Committee

IO: Institutional Official

IP: Intellectual Property

ITAR: International Traffic in Arms Regulations

JIT: Just In Time

LOI: Letter of Intent

MTA: Material Transfer Agreement

NAS: National Academy of Sciences

NASEM: National Academies of Sciences, Engineering, and Medicine

NASIS: Nebraska Annual Social Indicator Survey

NCC: Nebraska Crime Commissions

NDA: Non-Disclosure Agreement

NDE: Nebraska Department of Education

NDHHS: Nebraska Department of Health and Human Services

NIH: U.S.  National Institutes of Health

NOA: Notice of Award

NOFO: Notice of Funding Opportunity

NSF: U.S. National Science Foundation

OMG: U.S. Office of Management and Budget

OPD: Office of Proposal Development (at UNL)

OSP: Office of Sponsored Programs (at UNL)

OSTP: U.S. Office of Science and Technology Policy

PHAB: Public Health Accreditation Board

PHI: Protected Health Information

PI: Principal Investigator

PII: Personal Identifying Information

QA: Quality Assurance 

QI: Quality Improvement

RCT: Randomized Controlled Trial 

RCR: Responsible Conduct of Research

RCS: Research Compliance Services

RDC: Research Data Center

RFP: Request for Proposals

SDOH: Social Determinants of Health

sIRB: Single Institutional Review Board

SOP: Standard Operating Procedure

SROC: Scientific Research Oversight Committee

UAE: Unanticipated Adverse Effect

UNMC: University of Nebraska Medical Center

USDA: United States Department of Agriculture

UX: User Experience